{"product_id":"an-amazing-little-girl-with-rhombencephalosynapsis-paperback","title":"An Amazing Little Girl with Rhombencephalosynapsis - Paperback","description":"\u003cp\u003eby \u003cb\u003eStephanie Detjen Costabel\u003c\/b\u003e (Author)\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eCan you say\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eRhombencephalosynapsis?\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003eThis is the story of an extraordinary girl living with an extremely rare brain malformation.\u003c\/p\u003e\u003cp\u003eWith over eighteen surgeries and countless hospitalizations and medical procedures, this incredible child has overcome more obstacles in her short six years of life than most of us endure in a lifetime.\u003c\/p\u003e\u003cp\u003eRhombencephalosynapsis gave way to a set of other difficulties including: Hydrocephalus, Chiari Malformation, feeding tube dependency, Laringomalacia, Microtia, hearing and visual impairment . . . but through it all, this child displayed a mind so brilliant and adaptable that she amazes and inspires us all.\u003c\/p\u003e\u003cp\u003eI would like to offer hope to those new to the journey of parenting a medically fragile, special-needs child. I want to share the realities we lived with- the challenges, the pain, the joy, and all we have learned.\u003c\/p\u003e\u003cp\u003eI would like to increase awareness, sensitivity, and familiarity to what life is like as a mother to a medically challenged child.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003e\"They said she wouldn't, she did . . . \u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eThey said she couldn't, she can . . . \u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003e\u003cem\u003eThey said she won't, but Oh she will\"\u003c\/em\u003e\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003cem\u003eRhombencephalosynapsis\/ Cerebello- Trigeminal Dermal Dysplasia Facebook Support Group\u003c\/em\u003e\u003c\/p\u003e\u003cdiv\u003e\n\u003cstrong\u003eNumber of Pages:\u003c\/strong\u003e 246\u003c\/div\u003e\u003cdiv\u003e\n\u003cstrong\u003eDimensions:\u003c\/strong\u003e 0.56 x 9 x 6 IN\u003c\/div\u003e\u003cdiv\u003e\n\u003cstrong\u003ePublication Date:\u003c\/strong\u003e February 24, 2022\u003c\/div\u003e","brand":"Books by splitShops","offers":[{"title":"Default Title","offer_id":42164080181383,"sku":"9780578360874","price":17.26,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0601\/2623\/2711\/files\/f5f7f5228bf87c523135639a145532d4.webp?v=1733302658","url":"https:\/\/booksby.splitshops.com\/products\/an-amazing-little-girl-with-rhombencephalosynapsis-paperback","provider":"Books by splitShops","version":"1.0","type":"link"}