The Many Faces and Lives of Sickle Cell - A Global Collaboration - Paperback

by Agnes Nsofwa (Author)

What is Sickle Cell Disease? Who does it affect? As one of the world's most common genetic disorders, why is it that sickle cell disease is also deemed to be one of the world's most neglected, under-researched and under-funded genetic diseases? Gain insight into Sickle Cell Disease through the eyes of 30+ complete strangers of all ages, cultures, language backgrounds and from all walks of life hailing from Africa to Australia and beyond. They have come together to share common but also uniquely personal experiences. Follow the lives of sickle cell warriors, caregivers and advocates as they navigate their way through love, loss, pain and an array of trials and tribulations of living with and advocating for Sickle Cell Disease. These are their stories of courage, heartbreak, resilience, and hope.